Metadata profile · Core 3.0 · individual-level components version independently

Minimum Information About Biobank Data Sharing

Maintained by BBMRI-ERIC

What it helps you do

MIABIS supports aggregate metadata for biobanks, sample and data collections, research resources, and networks, with separate individual-level components for samples, donors, and events.

  • Biobanking
  • Clinical
  • Laboratory
PlanAcquireHarmonizeExchangeLearn + reuse

01

Where it fits and where it does not

Use these four checks before committing implementation time.

Use it when
Biobank directories, cohort discovery, federated catalogues, access negotiation, and metadata exchange across biospecimen networks.
Limits
Core 3.0 is aggregate-level metadata, not a complete specimen record. Individual-level components and serializations version separately, and MIABIS does not by itself establish consent, sample quality, or one universal conformance test.
Best for
Biobanking and Clinical and Laboratory teams working across Plan → Acquire → Harmonize → Exchange.
Maturity
ScalingUsable now, but adoption or tooling is still developing. Pilot the exact stack first.

02

See it in the workflow

This view shows the input, the change the standard introduces, and the resulting output.

  1. InputWhat starts

    Biobanking and Clinical and Laboratory source data, metadata, and local mappings

  2. MIABISWhat changes

    Use MIABIS as a pinned metadata profile across Plan → Acquire → Harmonize → Exchange

  3. OutputWhat becomes possible

    A handoff the next system or team can validate against the same release

Readiness gateCore 3.0 is aggregate-level metadata, not a complete specimen record. Individual-level components and serializations version separately, and MIABIS does not by itself establish consent, sample quality, or one universal conformance test.

03

A concrete example

A network catalogue validates Core 3.0 records for each biobank, collection, research resource, and network, links individual-level records with stable identifiers, and pins every component, terminology, and serialization release.

Why it matters: Improves cohort discovery and exposes sample and donor context, but analytical quality, outcome validity, representativeness, access rights, and leakage controls remain separate gates.

04

What it fits with

A draft MIABIS-on-FHIR implementation guide maps selected content to FHIR R4; SPREC adds preanalytical history, while ISO 20387 addresses biobank competence and operations.

05

Implementation starter

Start with one bounded handoff. Pin, test, and review it before scaling.

  1. Define one handoff, its accountable owner, and the decision MIABIS must support.

  2. Pin the exact version and companion artifacts: Core 3.0 · individual-level components version independently.

  3. Map one representative input to the required metadata profile artifacts.

  4. Test the result against the canonical source and record every exception.

  5. Preserve the source data, mappings, and review evidence before scaling.

06

Test the main limitation

Risk

Core 3.0 is aggregate-level metadata, not a complete specimen record. Individual-level components and serializations version separately, and MIABIS does not by itself establish consent, sample quality, or one universal conformance test.

Test

Run one representative end-to-end pilot and record exactly where MIABIS loses context, needs an extension, or depends on another standard.

Risk

Machine-readable output may still be unfit for analysis or ML.

Test

Test the output for missing context, provenance, terminology alignment, time leakage, and the intended downstream decision. Improves cohort discovery and exposes sample and donor context, but analytical quality, outcome validity, representativeness, access rights, and leakage controls remain separate gates.

07

Official resources

Specifications, diagrams, examples, and guides from the organizations that maintain them.

  • Primary sourceCore 3.0 · individual-level components version independently

    BBMRI-ERIC MIABIS documentation

    Official publisher or steward guidance for this metadata profile profile.

    Publisher
    BBMRI-ERIC
    Open official source

Next action

Put this profile in context

Compare its role with adjacent standards or place it inside an end-to-end data pathway before choosing an implementation.